XP Support Group Home

Our Mission

The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend Camp Sundown or respite in a protective environment.

We strongly encourage you to visit the XP Society web site, and invite you to return here for UK specific content and information.

UK Registered Charity Number: 1075302

If you or a member of your family has been recently diagnosed with XP and wish to be in contact with other families, by e-mail , please join Xp-connections an email mailing list restricted to patients and families of patients, plus medical professionals specializing in this field. Please contact Pat at the XPS ([email protected]) saying why you wish to join.

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General Information: [email protected]

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