| XP ConnectionsPlease join the XP-connection mailing listIf you or a member of your family has been recently diagnosed with XP and wish to be in contact with other families, by e-mail , you can join Xp-connections. A mailing list is a group of e-mail users who share information on a topic of common interest; in this case, xeroderma pigmentosum. X is a private email mailing list. An "invitation only" list restricted to patients and families of patients, plus medical professionals specializing in this field. Please contact Pat Mannix ([email protected]) saying why you wish to join. To learn more simply click here: http://www.xps.org/xp-connection.htm to be taken to the XPS site where all is explained. |
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