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The XP Society.
http://www.xps.org
Overview
- Xeroderma
Pigmentosum Society, Inc.
is a not-for-profit
organization founded by Caren and Dan Mahar, whose youngest daughter Katie suffers from
xeroderma pigmentosum.
This site provides a focal point for information about this rare genetic disorder and to
record the activities of the XP Society, which is dedicated to helping XP patients and
their families. -
| An excellent web site with much in depth information on XP. |
| Run by the XP Society, a US based society |
| Organisers of "Camp Sundown" |
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