News of Other Organizations
SpEArHead
(Special Education At Home)
Changing Faces
British Porphyria Association
XP Society
An excellent web site with much in depth information on XP.
Children of the Moon
Enfants de la Lune
Mondscheinkinder
Affiliated organizations
Contact-a-Family (CAF)
Rare Disorders A
lliance (RDA)
Climb
Genetic Interest Group (GIG)
Skin Care Campaign (SCC)
Cockayne-Syndrome
Clothing Suppliers
A list of
companies that offer XP relevant clothing with long sleeves or long trousers.
XP Friendly Places
Association of Community Health Councils for England & Wales
The Patients Charter and You
Please suggest additional Links for this page
Please send us details of any additional sites you would like to see listed here.
Site Address
Comments
Name
Title
Address
E-mail
Phone
Click here for:
Contact Information
[email protected]
Copyright � 1999-2004 XP Support Group.
![[New!]](../../images/smallnew.gif){kind=small}