Xeroderma Pigmentosum Support Group

Clothing & Equipment

How to Make the Face Mask

You will require:

* A legionnaires sun hat with a stiff peak
* Stick and sew velcro
* UV protective film available free from XP Support Group


Assembly Instructions:

1. Attach the sew part of the velcro to the Legionnaires hat along the peak and down the two sides.

2. Cut the protective film to fit along the peak. (It is better to cut the lower part when the hat is on the subject so you can see how far you need to come down to cover the neck and shoulders).

3. Stick the velcro to the plastic film:
and attach to legionnaires hat.


4. Finish off by cutting the film to the required length.

A mask lasts about 3 months depending on the wear. Replace when it becomes scratched. Use the old mask as a template.

 

List of Suppliers

Here's a list of Suppliers we have found useful or had recommended to us.

Sunsuits.co.uk

Sunsuits.co.uk
Offer a small range of protective clothing from Australia for children. Sunsuits also give a percentage of their profits to The XP Support Group.
Contact : Julie Yardley Email:mailto:[email protected]

Sunsuits have moved to:
30 Kimbers, Petersfield, Hampshire GU32 2JL Tel/fax 01730-302008.

Rohan

Rohan Direct
Range of clothes for adults. Some of their clothes offer sun protection of a minimum of SPF 30
Tel : 0870 601 2244

Rohan Designs Ltd
Tel : 01908 517900 E-mail : [email protected]
30 Maryland Road Tongwell Milton Keynes MK15 8HN

Bonwyke Window Films Ltd

Bonwyke are the suppliers of Dermagard, the only UV protective film in the UK that has been specifically tested for use by patients with light sensitive conditions. Bonwyke offer members of the XP Support Group a discount on the film when bought direct from them. Bonwyke can also supply a UV meter which gives a good indication of the amount of UV that is present in a given area, please note this meter is not a medical device and can only act as a guideline. For further information, please contact Justin Harris at Bonwyke or Sandra Webb at XP Support Group

Unit 3, Salterns Lane Industrial Park
Salterns Lane
Fareham
Hampshire
PO16 0SU
T: 01329 289621 F: 01329 822768
 
Contact : Justin Harris, Sales Director

Sun Precautions

Suppliers of a wide range of adults and childrens sun protective clothing
2815 Wetmore Avenue
Everett
Washington 98201
USA
Tel: 1.800.882.7860

Sunsibility

Suppliers of clothing for adults and children
3 Chadacre Road
Stoneleigh
Epsom
Surrey KY17 2HD
Tel: 0208-224-0834
E-mail : [email protected]
Contact: Angeli Khatri

Sun Togs

Sun Togs have been taken over and are trading again at the following address:
Litton House Saville Road PETERBROUGH PE3 7PR Tel : 01733-765030 Fax : 01733-765210
Sun Clothing
Offers a good selection of long trousers and long sleeved shirts for adults. For children they have a choice of 2 long sleeved shirts and legionnaires hats. Sun Clothing offers a good selection of long trousers and long sleeved shirts for adults. For children they have a choice of 2 long sleeved shirts and legionnaires hats.
907 Charles Street, Fredericksburg, Virginia 22401
Contact : Kimberly Carr Tel : +1 540 373 7175
E-mail : [email protected]

Suninsight

This company has a good range of adult clothing. At the momment they only have hats that are suitable for XP children. They intend to produce long sleeved shirts for children in the near future. They also supply RIT wash-in Sunguard.

Members of the XP Support group can order on-line and claim a 10% discount by quoting Ref: XXPSG0607. This applies to all goods except factor 60 sun creams.

XP Office