Xeroderma Pigmentosum Support Group

Fundraising

We are truly grateful to all of you who have made donations and held fundraising events on our behalf.

Looking for an unusual Christmas Present?

This year the XP Support Group is working with eBay for Charity and are promoting an alternative Christmas present. This Christmas we are asking you to help sponsor a child to attend one of the night time camps, It costs �350 to send a child to Owl Patrol, �2,500 to send a family to camp in the USA, �500 to send a child to France or Germany. You can sponsor a child from as little as �10. You will receive a CD of a recording of the "Bear Necessities" made by the children, parents & volunteers at the Owl Patrol 2007.

Find us on ebay

For a £10 gift the item reference is 110184175769

For a £20 gift the item reference is 110186341663

For a £50 gift the item reference is 110186342123

Donations

Thank you to all of you who sent donations over the last six months we would like to say a particular thanks to the following:

Carl Edwards who raised �1030. Carl raced along stage 15 of the Tour de France from Foix to Loudonville. Carl covered the 121 miles in 11 hours and 10 minutes. Of the 4500 who finished the race Carl came in at 3499. Congratulations on a great achievement.

Prestwood Infant School who raised �280 . We send our special thanks as Prestwood Infant school have continued to support us over the 9 years of our existence.

High Wycombe Lions for �1,000 which will buy a special present that will be revealed at the Owl Patrol 2008 and to Sandra Webb who celebrated her 50th birthday at St Katherine’s the home of the Owl Patrol and raised just over �1200 for XP and the Sue Ryder Prayer Fellowship.

Past Donors include

* The London Law Trust, awarded a grant of 2,500 towards the 2005 Owl Patrol Camp.
* High Wycombe Lions for �100 to buy sun cream for Yuni and Bexy from Cuba.
* The sun cream was presented to Yuni and Bexy at the Owl Patrol Camp by their President, Mrs Pam Nower.
* The Parishioners of Little Hampden Church for�140 donated at their annual Carol Service.
* The Colleagues of Mrs Harj Dhaliwal for �300 raised at a charity Dinner.
* The Children of Prestwood Infant School who raised �137 with their Christmas Bauble Fund. Instead of giving Christmas presents to their teachers the children gave a donation in exchange for a Christmas bauble which was hung on a tree.
* Maria Gardiner and friends who for the second year held a family New Years Party and raised �79
* Silver Fox Bowling Club raised �102!
* The Syndicate of Wolverhampton held a Black Tie Ball at the Park Hall Hotel, Wolverhampton. Proceeds from the charity raffle raised �470. Our thanks to Rodney and Molly Dillon.
* British Airways for �200 from their "Change for Good" programme.
* 1st Prestwood Scout Group for �30 donated at their annual Carol Service
* Friends of the Gateway School, Great Missenden who raised �1,500 to provide us with a bouncy castle and trampoline for use at our meetings and the Owl Patrol camp. The Bouncy castle will have its first outing at the Barbecue and Fireworks night on 8 November
* Poynton High School Year 7 who raised �66.

How to Donate:

Electronically

We now have two organizations that are good enough to process electronic donations for us. CAF and Workwithus.org

Donate via Contact a Family (CAF)...

At Workwithus you can either donate or set up a sponsorship fundraising site.

Donate via Workwitus ...

Create an on-line sponsorship with Worksithus...

By Cheque

Donations made payable to "The XP Support Group" should be sent to:

XP Support Group
Registered charity no: 1075302
2 Strawberry Close
Prestwood
GREAT MISSENDEN
Bucks HP16 0SG
UK

Thank you.

If you donated and need to declare your donation for UK tax purposes the form is here:

UK Gift Aid Declaration Form

Fundraising Events

London Marathon 2008 - 12 April 2008

Graeme Akhurst will be our Silver Bond Runner in the London Marathon. Graeme's brother has XP and we are delighted that he is running this on our behalf.

Please support him by sponsoring him on-line here

Comrades Marathon 2008

Martin White & Uschi Mehnart of Elga Lab Water in Lane End will be running the Comrades Marathon in South Africa next year. This is an Ultra Marathon and covers a distance of 56 miles and will take approximately 11 hours. Martin and Ushi will be raising funds for the XP Support Group and the Toy Box charity .

To follow their training progress please see their blogspot here.

Becky's sponsored slim

Many of you know Becky as one of our Owl Patrol Volunteers, she is doing a sponsored slim to raise money for our group. Here are her words as to why she is doing this. "I thought this would give me motivation to lose weight before next camp, as believe it or not in my first year as a volunteer I was 5 stone lighter."

Help support me by donating on line here

Adidas Women's challenge

Sunday 7 September 2008

XP Office