|
Our book of Remembrance was opened in June 2003 with the following words:
In 1999 the XP Support group was established in the UK to assist patients and their families with XP and other light sensitivities.
Until then many families lived in the dark and were forgotten by our society. This book of remembrance will ensure that our
"Children of the Moon" will never be forgotten.
The Book of Remembrance is kept at the UK Offices and is available for anyone to see. It is also shown at the Owl Patrol
night time camp.
|
