FAQs
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Frequently Asked Questions

This is where we post the answers to frequently asked or searched for questions.

What is XP?
What are the signs or symptoms of xeroderma pigmentosum?
Where can I find details on XP therapy?
Related Conditions:
C.E.P / CEP
Erythropoietic Protoporphyria and Variegate Porphyria
polymorphic light eruption
Where can I find tips for students?
Who are the Children of the dark?
Are there any UV filters you can recommend?
What is the XP Society?
What is the XP Support Group?
How Can I contact you?
When is the next XP Support Group Meeting?
What are my rights as a patient?

Who are the Children of the dark?

The Children of the dark, Children of the night, and Moonchildren are phrases sometimes used to refer to XP Sufferers. Click here for links.

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Where can I find info on CEP?

Congenital erythropoeitic Porphyria (CEP), also known as Gunther's Disease, is an extremely rare autosomally recessive genetic disorder. It is caused by a defect in the biosynthetic pathway of heme, the carrier of oxygen in red blood cells.

More information is available at:

http://rarediseases.about.com/library/weekly/aa072000a.htm
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Where can I find info on Erythropoietic Protoporphyria and Variegate Porphyria?

[This is the answer to the question.]

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Are there any UV filters you can recommend?

Our list of recommended clothing suppliers is here.

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Revised: July 05, 2002 .
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