Programme
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"The Owl Patrol"

Programme

Let us introduce you to Oliver or "Ollie" as he's known, he's our Mascot for the Owl Patrol. Ollie looks forward to welcoming you the first ever night time camp to be held in the UK at St Katherine's Parmoor, Nr Frieth from 8-11 February 2002.

The camp is open to all patients and their families with XP or other light or UV sensitive conditions. The camp is free to all patients and to one accompanying adult if the patient is under 16. All other campers are asked for a donation of �10 towards the cost. Bursaries are available to help with the cost of travel, so cost should not be a reason for you not to attend.

If you wish to attend, please contact Sandra Webb at XP UK Headquarters as soon as possible.

For those of you unable to attend, photos will be posted daily to our website here at : www.xpsupportgroup.org.uk

Application forms are available from the XP office or can be downloaded from our website at: www.xpsupportgroup.org.uk:

Camper Application
Volunteer Application

Please note that we are almost completely booked, so please send in your forms if you want to be there.

The programme for the weekend (which is still subject to change) is given below:

Friday 8th

-Arrival during the afternoon
7.00pm           Welcome dinner and Pirates party

Saturday 9th

10.00              Breakfast and free-time
12.00-17.00     Arts & Crafts and Games
12.30              XP Research & Diagnostics - what happens to your biopsy
Professor Alan Lehmann, MRC Cell Mutation Unit, University of Sussex
14.00             Lunch
15.30             Parallel Workshops for Adults and children
                    Why do I look different?
                    Workshop run by Changing Faces
17.00             Beginning of night-time activities - including The Earthworm Jamboree - presentation by Tammy Freeman
19.00             Pool Party at Wycombe or Marlow Sports Centre
20.30             Dinner at Cafe Al Fresco, High Wycombe.
22.00             Outdoor activities at St. Katherine's including a coaching session by Wycombe Wanderers FC.

Sunday 10th

10.00             Breakfast and free-time
12.00-17.00    Arts & Crafts and Games
12.30             Skin Cancer and how to recognise it
Speaker from Marc's Line (the Melanoma Helpline) - followed by Question and Answers session with:

Caren & Dan Mahar, XP Society, USA, 
Sandra Webb XP Support Group, UK, 
Dr Sheru George, Consultant Dermatologist, Amersham Hospital.

14.00         Lunch
15.30         The future for XP -TN45 enzyme cream
Mr Jon Klein, Director of Operations, AGI Dermatics
17.00         Outdoor activities at St. Katherine's
19.00         Farewell Dinner
21.00         More outdoor activities
24.00         Close of Camp

Campers leave after breakfast on Monday 11th

The Camp is supported by The Sue Ryder Foundation, Give-a-child a Chance, ITT Charitable Trust, The Roald Dahl Foundation, Lloyds TSB Foundation, John Lewis (High Wycombe), the Buckinghamshire Foundation, BBC Children in Need and The Roger Vere Foundation.

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