The next meeting of the Owl
Patrol will take place from Friday 14th February to Monday 17th
February 2003 at St Katharine�s, Parmoor. Over the weekend there will be arts and crafts activities during the day and outdoor activities at night. Our speakers will include Professor Alan Lehmann who will discuss new developments and Professor Alain Sarasin who is working on gene therapy for XP. There will also be a questions and answers session with a Consultant Dermatologist. In addition, following the
meeting with the European Space Agency, a team from the task force will be at
Camp on Saturday 15th to discuss their developments of clothing and
face masks for patients. We welcome your attendance to give your views. This is
an excellent opportunity for you to help design equipment that will really help
those with XP and other light sensitive conditions. All residential places are now completely booked, however we are still accepting those of you who would like to come along as day campers. Please contact Sandra Webb at XP Headquarters as soon as possible. Travel expenses to attend Camp will be met by the Support
Group Application forms and camp programme are available here. *The Forms are in Adobe PDF format. You can download the Adobe� Acrobat� Reader free from .
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