Owl
Patrol Camp Programme 14-17 February 2003
Friday
14th
Arrival during the afternoon
7.00pm Welcome dinner and Wizards and Witches Party until late
Saturday 15th
08.00-11.30 Breakfast and free-time, there will be limited Arts
and Crafts available for early rising children
12.00-17.00 Arts & Crafts and Games
12.00 XP Research & Diagnostics
Professor
Alan Lehmann, MRC Cell Mutation Unit, University of Sussex
13.00 Some progress towards gene therapy
Professor Alain Sarasin,
Centre National de la Recherche Scientifique, Paris
14.00 Lunch
15.00 UV Protective clothing
Discussion
with Angeli Khatri of Sunsibility. Sunsibility offers a range of sun protective
clothing, Angeli is looking for ideas to extend her range and members of
the European Space Agency Task Force looking at providing equipment for XP
patients. The Group is Led by Elie Znaty of Bertin Technolgies
16.30 Outdoor activities at St Katharine�s (meet the
pets)
18.00 Coach leaves for Marlow Sports Centre
18.30 Pool Party at Marlow Sports Centre
20.00 Coach leaves for High Wycombe
20.30 Dinner at Caf� Fresco, High Wycombe
22.00 Coach leaves for St Katharine�s
22.30 Outdoor activities at St Katharine�s
Sunday 16th
08.00-11.30Breakfast and free-time and limited activities for early risers
11.00 Short service in the chapel led by Pauline Jones
12.00-17.00 Arts & Crafts and Games
12.30 Questions and answers session
Sandra
Webb XP Support Group, UK , Professor Alan Lehmann, Professor Alain Sarasin ,a
Consultant Dermatologist and representative from the European Space Agency Task
Force
14.00 Lunch
15.30 The Earthworm Jamboree � presentation by
Tammy Freeman and Alison Fraser
18.00 Farewell Dinner followed by Puppet show
21.00 More outdoor activities
Campers leave after breakfast on Monday 17th
