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Professor Alan Lehmann was contacted earlier this year by P J Brooks who is the only researcher of which he is aware that is working on neurological abnormalities in XP. In his studies he is trying to understand the cause of the neurological abnormalities and would really be helped if he could obtain some post-mortem brain biopsy material. Do you think we should assist by asking for families to give consent for body parts to be used in research?

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