Professor Alan Lehmann was contacted earlier this year by P J Brooks who is
the only researcher of which he is aware that is working on neurological
abnormalities in XP. In his studies he is trying to understand the cause of the
neurological abnormalities and would really be helped if he could obtain some
post-mortem brain biopsy material. Do you think we should assist by asking for
families to give consent for body parts to be used in research?