|
|
|
About XP
|
|
Files: 7 |
 Various documents that explain Xeroderma Pigmentsoum.
|
|
|
|
|
XP Patient Information Pack
|
|
Files: 9 |
|
Ever since the Charity was set up , it has been a dream to produce an information pack that will help patients and their families from diagnosis through the different stages of their life. We
have been able to achieve this with a grant that we received from Jeans for Genes in 2006.
The pack consists of 12 Information Leaflets as follows:
• What is the XP Support Group?
• What is XP?
• Getting Medical Advice
• Getting help from Social Services
• Out and About
• Protection from the Risks of UV
• Genetics of XP + XP Top Tips
• XP at the different stages of Life
• What is UV?
• Owl Patrol weekend Camp
• XP Fundraising
|
|
|
|
|
Newsletters
|
|
Files: 24 |
|
The XP Support Group Newsletter is published roughly 3 times a year. We are delighted to announce that Holly Webb is the new editor of the Newsletter. If you have any news items or articles for the Newsletter or would like to Sponsor the Newsletter please use  this form to contact us
|
|
|
|
|
Owl Patrol
|
|
Files: 4 |
|
Download application forms here.
|
|
|
|
|
Fundraising
|
|
Files: 2 |
|
Some useful forms related to fundraising activities. - If you have donated to the XPSG you may need this UK Gift Aid declaration form. - If you wish to make a standing order to the charity you my find this form useful.
|
|
|
|
|
Annual Reports
|
|
Files: 7 |
As a UK registered charity we publish our annual reports every 2 years.
|
|