Xeroderma Pigmentosum Support Group
| The Patient Information Pack is on-line! |
|
With this Newsletter patients and their families will have received a copy of our new Patient Information Pack. Ever since the Charity was set up , it as been a dream to produce an information pack that will help patients and heir families from diagnosis through the different stages of their life. We have been able to achieve this with a grant that we received from Jeans for Genes in 2006.
The pack consists of 12 Information Leaflets as follows: |
| Next > |
|---|