Today we launch an appeal to fund a specialist nurse for XP and light sensitive patients to act a Liaison Officer between all the services that affect an XP patient. This nurse will also be a clinical nurse who would be available at the XP Clinic held at St John’s Institute. We are actively seeking funding from outside  Organisations but we are also looking for you to help.

 If you would like to make a donation , please send a cheque to made payable to the XP Support Group or donate on-line at www.xpsupportgroup.org.uk and quote “Nurse Appeal”.