• Who We Are

    The XP Support Group is a UK Charitable Trust whose aim is to relieve the needs of people with Xeroderma Pigmentosum and other related conditions. Read More...

  • What is XP

    XP is an extremely rare genetic skin condition for which there is no cure. It affects less than 100 people in the UK and is characterized by an extreme sensitivity to ultraviolet (UV) rays. UV is in sun light and a lot of artificial lighting. Unless patients with XP are protected from UV, their skin and eyes will become severely damaged which leads to cancer. Read more...

  • What We Do With Funds Raised

    We fundraise throughout the year and use the funds raised to provide support to patients with XP. This includes running a night time retreat for patients and their families (Owl Patrol), providing UV meters to all newly diagnosed patients and sending visor film to all patients throughout the UK. Read more…

Owl Patrol

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xeroderma pigmentosum

XP Support Group

UV protection not isolation

The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend night time camps in the UK, USA, France & Germany or respite in a protective environment

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