XP Support Group - UV protection not isolation.
Working in Partnership with Teddington Trust.

Links to our sister groups abroad

USA – XP Family Support Group www.xpfamilysupport.org

GERMANY – Freunde die Mondschein Kinder www.xerodermapigmentosum.de

FRANCE – Enfants de la Lune http://asso.orpha.net/AXP/debut.htm

SOUTH AFRICA – www.xpsociety.co.za