Family Info

Patient Information Pack

Xeroderma Pigmentosum (xp) Patient Information Pack

Ever since the Charity was set up , it has been a dream to produce an information pack that will help patients and their families from diagnosis through the different stages of their life. We have been able to achieve this with a grant that we received from Jeans for Genes in 2006.

The pack consists of 12 Information Leaflets as follows:

• What is the XP Support Group?
• What is XP?
• Getting Medical Advice
• Getting help from Social Services
• Out and About
• Protection from the Risks of UV
• Genetics of XP + XP Top Tips
• XP at the different stages of Life
• What is UV?
• Owl Patrol weekend Camp
• XP Fundraising