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Forthcoming Events

27 July

10-13 February Owl Patrol 9-12 February 2018 XP International Medical Conference and Camp, Holiday Inn, Camden Lock, London   The XP International Medical Conference and Camp We are pleased to announce the date for the 1st XP International Medical Conference and Camp which will provide an opportunity to meet with other families affected by XP […]

Office Hours

27 July

Please note the office is no longer manned, we have an answer machine service on 01494 456192. To contact Sandra Webb please email:  and general enquiries should be sent to     XP Clinic dates 2017 Paediatric 27th January, 24th February, 28th April, 26th May, 23rd June, 28 July, 25th August, 22nd September, […]

Recently raised funds

27 July

Our sincere thanks to…. Wolfgang Hametner for running the London Marathon in April and raising £2000 Calum Brewster, Derek and John for completing the Caledonian Challenge in June and raising £2250 Wayne Bishop for doing Ride London in August and raising £325 Juliette Henon for completing the Marathon du Medoc and raising £306 Miriam Silverlock […]